Tuesday, March 29, 2011

I want to eat her!

This little lady is the cutest thing ever. I am so in love. I stare at her all day long!

We just had an appointment with her GI specialist. No news really. We are waiting for more test results to come back. Part of her liver biopsy is in London undergoing some very special test that can only be done there. We should be getting some answers from that this week. Ruby has lost a bit of weight since we were in the hospital, so we are going to try two more weeks of breastfeeding, and if she goes not gain quick enough, then we have to put her on a special formula. Her body is not producing enough bile which is essential in breaking down long chain triglycerides which is the type of fat in breast milk. The formula she might go on would be easier for her body to absorb fat from. Currently she has little fatty deposits that come out in her diaper.
The currently plan is to treat her sick liver the best we can and keep her as health as we can with the liver that she has. At some point, it will most likely get to the point where a transplant might be needed.
She is super happy and very content. I am so thankful that she is not in any pain. She is developing fine in every other aspect. We are so blessed to have Ruby Jane in our family. She has already taught us so much, and given us some many opportunities to strengthen our testimonies in the gospel and the plan that our Heavenly Father has for us. We love our little girl so much!
Please continue your prayers for her!

8 comments:

Aubrey said...

If you ever need anything, my cousins daughter was born with some liver defect, she had surgery just weeks or months after she was born and then more recently she had to get a whole liver transplant. And she isn't even two yet. I know my cousin has gone through a lot to having a three year old too. Let me know if you want an email or number she lives near long beach.

Robyn said...

Oh my, she is a gorgeous happy little girl. I hope you get some answers soon, but in the meantime I'm so glad she's doing well and you can get back on your routine and back to normal life!

Anonymous said...

Ah the photo is priceless. Her smile is one of the best I've seen. I'm thinking about you guys constantly.

Eve said...

I am grateful Ruby is doing well, considering. We pray for her and your family and will continue to do so!

ellen said...

I have Ruby's name on my prayer roll taped to my headboard. I hope she gets her chub on and continues to be so happy. :)

Anonymous said...

holy CRAP she is cute! seriously. i can't get over it!

Katie said...

She is darling! I need to put you in touch with my friend who had a son get a liver transplant. She is way into organ donation stuff.

ls said...

ho.lee.cow. she is SO darling. i want to eat her too, and i don't even know her :).

glad she's doing better. are you gonna post about what exactly is going on with her little body? poor little babe. hope she keeps feeling good.