
We just had an appointment with her GI specialist. No news really. We are waiting for more test results to come back. Part of her liver biopsy is in London undergoing some very special test that can only be done there. We should be getting some answers from that this week. Ruby has lost a bit of weight since we were in the hospital, so we are going to try two more weeks of breastfeeding, and if she goes not gain quick enough, then we have to put her on a special formula. Her body is not producing enough bile which is essential in breaking down long chain triglycerides which is the type of fat in breast milk. The formula she might go on would be easier for her body to absorb fat from. Currently she has little fatty deposits that come out in her diaper.
The currently plan is to treat her sick liver the best we can and keep her as health as we can with the liver that she has. At some point, it will most likely get to the point where a transplant might be needed.
She is super happy and very content. I am so thankful that she is not in any pain. She is developing fine in every other aspect. We are so blessed to have Ruby Jane in our family. She has already taught us so much, and given us some many opportunities to strengthen our testimonies in the gospel and the plan that our Heavenly Father has for us. We love our little girl so much!
Please continue your prayers for her!