This is Mike, Ani's brother, and she has asked me to update everyone as to what happened. Around 10:00pm Ruby coded and the rapid response team immediately began work on her. To summarize the very technical medical jargon that was explained to us she was in a "pre cardiac arrest" state where they were worried about her going into full cardiac arrest. Numerous doctors and nurses worked on her for over an hour to get her stable (about 15 people in the room all working very rapidly).
They were able to get her to a stable enough state to take her to the operating room and place a line for dialysis. The dialysis, as explained by my cousin/living donor option/amazing ER nurse, will do a ton to help her. The poor baby right now is completely swollen, sedated, and in need of the dialysis to help get her ready for the surgery.
In the midst of all this and Ruby crashing the doctors received a call from "up north" for a liver from a child, the best offer to date. The doctors are optimisitic due to the small size of the donor and will be flying there shortly. However, Ruby needs to be more stable before they operate. Right now, they would not perform the operation. She needs to be more stable.
Specificity brings about results. Our desire is to direct specific prayer towards Ruby stabilizing, first and foremost, and then that the donor liver will be a match.
Wednesday, August 10, 2011
Update
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12:02 AM
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56 comments:
Woke up randomly in eastern time zone to happen to read this. PRAYING HARD for her to stabilize and then that the liver is a match. Hang tight Ruby.
omg I'm sitting here at my computer prayer for her! I've set up a place in my living room where I'm on my knees praying for her. I can't sleep and I'm constantly refreshing my blog and facebook to see any updates. Hang in there Ruby!!! you have come this far and you are so close!!!
My heart goes out to you, your family & precious Ruby! You have been in my thoughts & prayers. Praying hard. You are truly a precious jewel Ruby! May God be with you and comfort you.
My thoughts and prayers go out to her and the family xo
Praying for stabilization and a miracle match baby Ruby-Godspeed - love from Ladera KK
Praying with all my might, and sending loving healing energy to your precious baby.
Can't sleep. Please keep updating when u can!! I love her so much!!
this little one is just tugging at my heart strings.....praying hard for you baby ruby!
I have been up all night reading about sweet and strong Ruby. My prayers are with your family and for Ruby to stabilize. Miracles can come true!! Although i dont know you sweet girl, You can do it Ruby!
When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned;
the flames will not set you ablaze. (Isaiah 43:2 NIV)
I thought it was odd that my 16 mth old daughter who never wakes up in the middle of the night just woke up...until I checked Facebook and saw the updates and just how much Ruby needs my prayers right now. What a privilege it is to be able to pray for this very special daughter of God in her time of desperate need. I know the Lord hears and answers our prayers and will bless his beloved Ruby. I have faith our collective prayers will be answered.
We love you Ruby...you can pull through!
I also woke up and didn't know why. I am so grateful for you sharing your experiance with us. I wish you didn't have to go through this! Sweet Ruby you and your family have already touched many lives.
Sending much needed prayers and love your way little girl. May God keep you tucked under his wing.
Prayers for you little Ruby girl <3
praying for the specifics!
Praying for Ruby to stabilize and hope that this liver is a match! She is such a little fighter! We love you Ruby!
Around 10:15 p.m. last night I sensed this urgency to cry out to the Lord in prayer for baby Ruby. I prayed desperately for her. I will continue to do so.
Thought of Ruby through the night when getting up to my own little girl. Praying that she stabilizes, and that the donor will be a match.
JC in MN
Prayers from Connecticut!...
Prayers for ruby. Stay strong little one.....
Lots of prayer and constant thoughts of Ruby and you. Praying now that she can stabilize and this small liver will be what baby girl needs. I know loving prayer is blessing Ruby and her sweet family.
Specific prayers sent your way. Dear God, please let this be Ruby's new liver. Amen.
I was led to your blog by a common friend, and I will be praying for your little girl and for you. I have been there; different medical problems but the same emotions.
Sending our love and prayers to sweet little Ruby from our family in Wyoming. May you receive the miracle you deserve!
So happy she is stabilizing, they got a line and is getting dialysis. So happy she is back in her room. We will pray for continual stabilization and strength and that the liver is the right match. The team of doctors you have are amazing. She's in the best of best places. She's so lucky to have such amazing care. Wish I could bring you some Bagel Shack bagels this morning. Anything you need Ani and Matt. You name it!!!!
Aimee and Howard East
Stay strong, Baby Ruby!
we love you Ruby!!! hang in there. prayers are just for you today!
praying....always praying.
Prayers sent from Dallas, Texas!! Our God is going to heal sweet Ruby Jean...just have faith and stay strong in Him!
I mean Ruby Jane! (: Our God knows us all by name so either way!
Prayers for stability then a match!!! Dear Lord, please hear all of our prayers and bless this little one with a miracle!!! I also want to say thank you for the updates, as you are all going through something so much more important than keeping us all up-to-date, some of us whom have never met you, but yet, out of the kindness of your hearts and the selfless act you keep us in mind and update us. May God bless you with the necessary miracle to bring a healthy baby girl home!
I was so scared to keep reading...I stopped breathing and began to cry as I scrolled down. I was so scared that we lost Ruby. I have prayed so hard and for so long fo Ruby to have the strength to beat this! I am so HAPPY that she has made it! Praying that she will stabilize and be strong enough to accept the donor liver. I am going to send this prayer request out to my church members in Kansas as well as all of my friends on facebook. We will get the prayers needed. God will hear our cries for help to heal baby Ruby to get her body strong for surgery and end this heartache for her and her family. May God lift you all as you stay with Ruby and give her your love and God's love. Amen!!!
Sweet, sweet Ruby!!! You are truly one of our Heavenly Fathers chosen. Hang in there sweet babe.
Hang in there Ruby! It is amazing to watch the love and support for Ruby, Ani, Matt and Kate spread through facebook and blogs. You have an entire world cheering for you little girl! You are a fighter!
Praying harder than I ever have. I've never wanted anything so bad in my life. I keep writing on my facebook status to pray for Ruby. I'm grateful for prayer. Thinking of you guys today. Thank you for the updates each day. Praying, praying!
"God gave me you for the ups and downs...God gave me you for the days of doubt. And for when I think i lost my way, there are no words here left to say, its true God gave me you"
-a
Praying for Ruby. Keep us posted, so we can continue to know what to pray for.
Much love and faith coming your way.
I am Matts first cousin and live in Arionza my family and I are wondering how we can get tested to see if any of us can be a donor for Ruby. Please let us know if there is something we can do to help little Ruby. She is in our prayers.
Ruby's story has touched my heart like no other. What an amazing little girl you've got there. My daughter is 5 months old and every time I look at her, I feel the need to send another prayer to heaven in behalf of Ruby. Thinking about you all here in AR.
BS
Hi I just found your blog through a friend's Facebook post about Ruby. I just wanted you to know that my thoughts and prayers are with all of you at this time. May you all, including sweet little Ruby, have the strength to continue on in this difficult time. And I pray that everything can go smoothly with the donor. I have a baby that is almost seven months and I can only imagine what you are all going through. Remember that the Lord is with you giving you the strength to keep going. Much love and prayers to your sweet family.
sending prayers to your beautiful baby!
Hi, My name is Joanna and I live in Atlanta, Georgia. A dear friend of mine shared your blog on facebook and I just read your story. I was so touched by your words and her precious face that I had to write you a note. I know you already know this, but you have a beautiful, brave little fighter - and your family is an amazing testament to what faith in God looks like. Our family has been through some medical struggles with our little boy, Jet - and will continue to fact them down the road - but nothing in the way of what your little angel has endured. My heart and prayers go out to your family. I admire your faith and perseverance so much. Thank you for sharing yours and Ruby's story with so many - you are changing lives. I will be sharing your story with my family and friends and asking for prayers of strength, comfort, and healing of your precious baby Ruby. Much love, Joanna
Hold on baby girl!
I am praying for your Ruby...
Praying for your sweet baby girl and thinking of you constantly! Lord Jesus, please hear our cries and bring healing to Ruby Jane.
today as i was driving on the freeway on my way home from a haircut, i had the distinct impression to turn down the radio and say a prayer for ruby. so i did. so many prayers for that baby girl, and for your whole family. xoxo
praying desperately for your sweet baby girl. thank you for sharing her with the world. love and prayers.
Praying for Ruby & your entire family.
You are in my thoughts. i discovered this website threw the twilight fan page 2 days ago. i know your little baby will make it though this. Keep your spirits up. its hard now, but after the operation your little baby will do just fine! :)
I don't pray. Nor do I believe in a god. But I do believe that the universe can and will provide comfort and good things to those in need. I do believe in the power of a community's words and hopes and yes, prayers to change a life.
May you see all of this come to light in sweet little Ruby. May your sweet Kate never feel this loss, and never feel she is second best either. It must be so hard for her to love her little sister so much and be so worried all the time....and so helpless. She is strong and beautiful, just like her baby sister.
Sweet darling Ruby!! Sweet daughter of God... Hold on, little one. I pray for you all the time! Today in particular! Hugs and loves from Seattle.
Our family is praying and praying for Ruby.. Miracles do happen. Keep fighting little Ruby...
Just found your blog and read your story from a link on fb. Heartbreaking, and I am praying like mad for your family, sweet, beautiful Ruby, and Ruby's doctors.
Praying for beautiful baby ruby. Thanks for sharing ruby with us. It definitely puts things in perspective and what really matters most. Thank you.
I am really sorry Ruby has to go through this. It breaks my heart. You guys are always in my prayers.
Your names are on the Boston Temple prayer roll. And my prayer roll.
I am o-pos. not breast feeding but I am just about 5'6 and weigh 122 --think I am too big? I have two beautiful daughters too and would do anything for them.. I would help if I could. monique@sonofagunranch.com
Thoughts-prayers.
monique --Bowdle-south dakota
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